November
28
Hello
everyone, I hope you all enjoyed your Thanksgiving holiday and long
weekend. We did! Tonight the house is quiet - a first in about 6
days! Friends started arriving home Tuesday night, and we've had
visitors ever since. It was a lot of kids, but I wouldn't have had
it any other way. It was great for Darren to see everyone, great for
them to see him, and great that they all saw each other. What a nice
group of "young adults" - hardly kids anymore! In addition to
visiting and hanging out, Darren went to the movies with friends one
night, and out to Applebee's another night. His friends tackled
doing a car transfer, and taking him out in our van. Everything went
very smoothly, and its great to have others who will take Darren
with them and do what needs to be done. I had no doubt it would
happen; it was just nice to see.
Thanksgiving
brought 14 for dinner at our house. I really didn't do much of the
cooking, so it wasn't too much work. Thanks to Mom, Michele, and
Lucille, everything was very nice. I know how much I have to be
thankful for, and said so in a prayer before dinner. Of course I
cried through my words, but managed to say what I wanted. The
food was kind of secondary; I was thankful to be all together and
have our family and friends with us. It was a lovely
day.
The
Kinnelon High School Hockey team had its first-ever alumni game. We
all went, with some trepidation on my part. I had two meltdowns -
one at the beginning when they were going to announce
everyone's name (I couldn't listen; could only think about how
Darren should have been out there) and again at the end of the game
when they gathered for a team picture and they brought Darren out
with them. Thanks for the shoulders, Jane and Cindy D. You were
there for me when I needed you. Darren seemed to thoroughly
enjoy himself, and again, it was good for him to see everyone and
everyone to see him. As difficult as it was, I was glad I
went.
As
we see more and more people, I realize how good it is for all
of you to see Darren. It has been a long time, and reading
e-mails and looking at pictures just isn't the same. I am so proud
of him when everyone tells me how good he looks, and how good
his spirits are. He is amazing, and he continues to give me strength
each and every day.
Our
elevator still isn't in, but the guys installing it have been
working their tails off for us. Long days over the holiday weekend,
and we truly appreciate their efforts. In the meantime, we are
managing with our makeshift set-up, but anxiously look forward to
moving Darren upstairs and us back into our own room. As our
schedule at Kessler takes shape, I will be setting up
other routines for stretching and exercising with Darren. I
know there are many volunteers out there, and I'll start contacting
you as I formulate a plan. The time between now and the end of the
year will be what we can arrange; after the new year I envision a
more solid plan. I appreciate all of your offers and watch
out - I WILL be calling some of you for different kinds of
help!
Thank
you to all of you who have made dinner for us. We have enjoyed them
all, and it is such a huge help not to have to plan, shop, cook,
etc. THANKS!!!
A few items for those
who are new to the list or might not have the information anymore:
the link to the photo album site
is:
http://www.imagestation.com/album/?id=4229700093&code=11748674&mode=invite&cmp=EMC-AlbumInvite
Don't
forget to post a message, but you have to register or sign in to do
that.
Also, Darren's e-mail is puckzman16@yahoo.com
Well,
enough for now, I think.
With
love, prayers and continued hope for more healing,
Cynthia
November
30
Hi everyone, I don't
have much "new" news to report on, but I do have some random (though
important) thoughts I would like to share with all of you. I am
writing this at Kessler, while Darren is in therapy. I forgot my
book and my phone, but perhaps that was a good thing. I got to do
two of my favorite things - walking and writing. I took a walk
around the property; not too scenic, but its brisk and sunny out,
and it felt good to be in the sunshine. Now I get to write, another
therapeutic activity. Sometimes as I relate the events and
activities of our day to day lives, I forget to leave out the most
important part of the happenings. I will attempt to fill in some
blanks today, as I review the last few weeks' events. First, I know
that many of you on this e-mail list know Carol Gordon and her
family, and know that Carol's mother recently passed away. However,
this list goes far and wide, and some of you have had e-mail and
phone conversations with Carol, without ever having met her. So this
news is for you, and also to reiterate how thankful I am to have a
friend like Carol (as well as the entire Gordon family). It is with
great sadness that we accept Charlotte's passing, and know that
she is resting in peace. Living next door, we have had many
occasions to interact with Carol's parents, and have always enjoyed
their company. Of course, her husband David and the whole family are
in our thoughts and prayers. Over the last few months, I can no
longer refer to Carol and the family as our "neighbors." That
implies that they just live next door. Our relationship is so much
more than that. We are so lucky to live next door and be such close
friends. How tragedy and crisis brings relationships
into focus.
In this same vein, I am
so thankful that Eli (Gordon) has been such a true friend to both
Darren and Ari. There's not many things that seem "normal" to us
these days, but having Eli at our house, just hanging out, is one of
the best parts of being home. He has hardly missed a day, and when
he's not around, I notice it! Thank you, Eli, for being there - for
all of us! Also, in relating the story of attending the Alumni
hockey game, I neglected to say "Thanks" to all those involved in
the association and the game for including Darren as you did. From
giving him jerseys, to dedicating the game to him, to including him
in the team picture, you really made him feel a part of the whole
event. That's what made the evening special - it wasn't just another
game. For all of those who have been praying for us, I wanted you to
know that I am praying, too, as has been evident to you in my prior
e-mails, I think. I wanted to take this opportunity to thank my
friend Betty, and her husband Rick for inspiring a new connection to
my faith. Betty bought a beautiful Bible for me when she visited in
Atlanta, and I have been reading it
each night, along with the Purpose Driven Life. When I feel I just
can't keep going, faith is helping me stay strong and focused.
Thanks also to the Regan’s for bringing me to Church and to the
whole congregation for making me feel welcome. Well, I know this all
sounds sappy today, but that's how I'm feeling, and I thought it
helpful to express. Remember, these e-mails are as much for me, as
all of you! Thanks to all of you for "being there." Til next time,
with love and prayers,
Cynthia
December
5
I
can hardly contain my emotion as I write this - Darren moved a toe
this morning!!!! I wasn't here to see it myself - doesn't that
figure? - but I was at church....John was getting Darren bathed and
dressed this morning when John told him to try to move his toes. At
first he couldn't, but then a few minutes later, Darren said he
thought he could move a toe, and he did! I believe in the power of
prayer, and that our collective prayers are working. While the
healing process may be slow, it is happening, that's the good news.
Whew! Now I forget whatever else I was going to write about
today!
Well,
there are fund raising events that are being scheduled that I'd like
to pass along the information on. There's a band concert
that is scheduled for Jan 7th - see attachment. Then there's Casino
Night on March 4th - see attachment on that, too. Then there's
a marathon/two-woman team half-marathon on April 10th. I don't
have information on that electronically (yet) but will send that
along as soon as I can.
What
else is happening: Therapy went well at Kessler this week. Feels
like we are getting into the routine. Looks like the elevator was
finished today. We are waiting for an inspection tomorrow (Monday)
and hopefully will be using it right away. I can't thank Steve
Masterson and crew enough for all of the time he put into this
project, and it was a project! Thank you to his wife and family for
sacrificing time that I'm sure he would have spent with them to work
on this. We truly appreciate his dedication to getting it
finished.
Saturday
we went to Giants Stadium to see Butler High
School play Westwood for the
championship. Butler lost, but we had a good time
anyway. We were fortunate to be in a suite for the game, and had a
great view of the field. Unfortunately, we didn't see the other
fans, so maybe some of you were there, too, that I missed
seeing.
Sunday,
it was back to Giants Stadium to see the Jets! John took Darren, Ari
and Eli while I had a bit of a break to do some shopping. Since they
won, it was great! Thanks to Bernie Schick for asking Herm Edwards
for tickets.
Now,
a request: I am looking for volunteers to drive Darren
to Kessler on Fridays. I don't need too many, but if anyone is
available from 12 noon til 4 pm on a particular Friday, starting Dec
17, I would love to hear from you. I could show you how to get
Darren in and out of our van, and everything else you need to
know before you actually take him. It's not complicated, and would
only take a few minutes. I'm not sure of the Kessler schedule for
Dec 24 and 31, but I will check this week.
Also,
there was a very nice article in today's Trends. I will try to scan
it and attach it to my next update.
Gotta
run - want to watch "The Five People You'll Meet in Heaven" - a TV
movie based on the book by Mitch Albom. I liked the book; hopefully
the movie will be good, too!
With
love, hope and prayers (and more prayers....)
Cynthia
December
14
Hi
everyone, no, you haven't missed any updates, I just haven't written
in more than a week. My apologies, and its to myself as much as to
you. Each day starts blending into the next, and I can't remember
what happened! Anyway, I'll do my best.
So
Darren's toes on his right foot continue to move, ever so slightly,
but at will. He thinks his toes on his left foot are moving, but we
can't see them moving - yet. I am positive they will start moving
soon, too. Seeing that more healing is taking place is so positive,
and I truly believe it will continue. Yes, our prayers continue to
work!
It's
been a week now that the elevator is operational and Darren is in
his new room! Lots of helping hands came to our assistance to help
move him upstairs and then put our room back together for us. It all
went very quickly and smoothly. Of course, he loves his new digs!
With smooth linoleum flooring and tile in the bathroom, he is able
to roll around quite easily. And even though there is carpet thru
the upstairs living room and into the computer area, he is getting
better at going over it with his manual chair. He is getting
stronger and able to do more things easier now. He wants to be able
to transfer from his manual chair to the power chair by himself, so
that is something to work on. Then he can buzz around upstairs as
much as he wants without wearing himself out. Moving upstairs also
meant taking showers in his new roll-in shower area! He was grinning
ear to ear while letting the water pour down on him! Oh, the things
we take for granted..............
Therapy
at Kessler is going well. Darren works hard each and every time he
goes, and he practices newly learned skills at home. This morning,
he transferred himself from the bed to his chair with no assistance
from me, just spotting. And he can go from his chair to the therapy
mat in his room with no assistance as well. When the transfer
surfaces are even or downhill, he can do it himself, as he's getting
stronger and more confident in his abilities. Having the therapy mat
is great, as he can prone (lay on his stomach), stretch and balance
on the edge - all good things to do. He is starting to "pop
wheelies" so he can get over uneven door thresholds and in and out
of the elevator, too.
A
physical therapist has come to the house twice so far, and will come
2 more times, as per insurance coverage. It is great to have him
here, working on equipment and skills right in Darren's own
environment. We will also have an OT come to the house 4 times, to
work on daily living skills as Darren actually does them. After
that, I am investigating options for the future - either a PT or a
personal trainer for an extended period of time to really help
Darren strengthen and improve. In the meantime, some friends are
helping with stretches, exercises and games - all very beneficial to
his development.
Darren
is helping to coach the Kinnelon Bantam Hockey Team, mostly 7th and
8th graders. He's gone to one practice and one game so far, and
really seemed to enjoy it. He said the kids were great, and he
really feels that he'll be able to teach them things that they'll
understand and use. Thanks to Coaches Tim and Andrew for making this
happen. I always thought Darren would make a good coach because he
understands the game so well, and now he has that chance. He looks
forward to making most of the future practices and games, too, as
long as they're not too early in the morning!
(See
what happens when I don't write in a long time - the update is
endless....................)
Last
Saturday was a long and busy day that started with a bantam hockey
game earlier than our usual morning routine would allow (but Darren
was determined!), he got a back and shoulder massage in the
afternoon (felt VERY good, he said!), went to the Christmas
Candlelight concert at the Smoke Rise Community Church with me
(beautiful music and singing to get us in the Christmas spirit),
then ended with the High School Hockey reception and game that
night. Whew, that was a busy day! But Darren enjoyed every
minute, and it was great for more people to see him and for him to
see them.
Sunday was
the Christmas decorating day, and it was with some reluctance that I
dragged out the boxes and the tree. Just isn't the same, but I
couldn't not do it, either. So I just did the minimum, and didn't
wear myself out with it. What goes up must come down, so I was
careful not to do too much.
A
home health aide started yesterday to help with the morning care. I
am hopeful it will work out OK, and look forward to getting a break
on some mornings.
Yesterday,
Darren & I spent some time on the computer exploring CLEP exams
for college credit and online courses. Within an hour or so of
filling out some forms, he received phone calls from 2 of the
schools! He chatted with them about his goals and is closer to
making a decision on how to proceed. He certainly is
motivated.
Today,
Darren had a visit with his doctor (a physiatrist) at Kessler. She
was very excited upon hearing of the toe movement, and declared
that he would now be considered an ASIA C - great news in my book!
He was originally an A, the worst level of injury. She spoke to
him about his future plans for school, driving, etc., and was very
positive about his progress.
Well,
I thought I was tired before I started writing - today was another
long day - but I managed to write even more than I had envisioned.
Thank you for allowing me to share our days with you, as well as our
hopes and dreams. You continue to keep me going, even when I don't
feel much like it. Your support with meals, driving, and
visits, as well as your on-going e-mails are greatly appreciated,
even when I can't respond individually. I hope you know how much
your offerings of help mean to all of us.
I
continue to take one day at a time. Some days are more tiring than
others, but somehow we make it through. After all, if Darren is
smiling and positive most all of the time, how can I not
be?
With
love, hope and prayers, especially
during this Holiday Season,
Cynthia
December
21
Hello everyone, and
Merry Christmas!
Knowing my recent track
record of infrequent updates, I'm sure this will be my last one
before Christmas. I want to wish all of you a very Merry Christmas,
and may you enjoy the holidays with family and
friends.
Our routine is coming
along here at home, but with a little twist this week. A home health
aide started last week, and I think she is going to work out fine.
However, she is now sick and will be out all of this week. I was
hoping to really have her trained well by the end of the year, but
now this will set us back a bit. I'm disappointed not to have
the help, but I am hopeful it will work out in the long run. We'll
see.
Our good friend Randy
Velischek (former NJ Devils player and current radio commentator)
put together a WONDERFUL day for us on Sunday. He brought a current
Devils player, Tommy Albelin, and former players John MacLean and
Ken Daneyko to our house for a visit! The guys couldn't have been
nicer. They sat, visited, ate and chatted for quite awhile. We
thoroughly enjoyed their visit, especially the fact they gave up a
Sunday afternoon to come and see Darren. What a treat! I've attached
a few pictures that we took that afternoon. I hope you can open
them! An early Christmas
present.
Therapy at Kessler is
going well, also. Darren now reminisces about how hard it used to be
to put on a t-shirt, or get one off. Now he does these things, and
more, so easily. When it doesn't seem like progress is made each
day, we have to look back and remember how far he's come. Now when
he transfers from his chair to the therapy mat, he doesn't even use
the sliding board, so he knows he's getting
stronger.
In just a few days, it
will be 5 months since his injury. I don't know how I feel about
that. It seems so long ago, yet it seems like yesterday, too. The
progress seems so slow, yet look at the differences in what he can
do. I continue to take each day at a time, trying not to
get ahead of myself or the situation. During the day, I can
focus on that with the daily tasks, but at night, when my head hits
the pillow is when the tears come. The only way to calm my fears, to
ease my pain, to lessen the burden is to say my prayers. To know
there is a force more powerful than all of us put together, to
believe that there is a plan though I don't know what it is, and
don't understand it, to think positive thoughts with all my heart -
this is what puts me to sleep. And with Christmas approaching, I
wish for so much more than I ever knew one could wish for. To wish
for things I've always taken for granted. To want those things it
seems like everyone else has. Wishes, prayers and dreams all wrapped
into one. I think of these things at night, so I can wake up in the
morning, ready to tackle another
day.
The reason I can tackle
each day anew is through all of you and your help. It just occurred
to me that all the "gifts" I've been receiving - dinners,
transportation, errands, shopping, etc. - are all the same. They are
all gifts of "time." Not having to shop for the groceries, not
having to cook the meals, not having to drive each and every day
gives me time. I am so grateful to ALL of you who have given us your
time - a very precious commodity - so that we may have a little more
of ours freed up. I apologize for not calling each and every one of
you for the meals and other goodies and gifts we've received. Please
know how thankful we continue to be for your care, concern and
support.
For those of you not on
our Christmas card list, our annual photo is attached to this
e-mail. It comes to you with wishes for a wonderful, joyous holiday
season.
With love, prayers
and hope for
recovery,
Cynthia
PS
I wasn't able to attach the pictures - not enough room in the
mailbox. Sorry. Maybe I can re-format them and send them in the
future.
December
22
Happy
Holidays!
As
we look forward to sharing Christmas with our family and friends, I
am reminded once again of all we have to be thankful for. May
the peace and joy of
the season be celebrated with love and
blessings.
Cynthia
December
29
Hi
everyone, and I hope you all had a Merry Christmas (at last those
who celebrate!).
We
had a wonderful three days of Christmas. It started with Christmas
Eve lunch here at our house with our good friends, the DeMarco
family. They used to be a family of four, now they are eight! Both
Dawn and Shelley are married, and Dawn and her husband Dan brought
their one-month old twin boys. It was wonderful to see them and the
babies. Christmas Eve dinner was once again a success as we
celebrated with the Schicks, Rathyens and Naseefs (Ralph and
Lucille's daughter and her husband George). It was, as always, a
lovely evening of food, wine and conversation. Christmas morning was
spent opening presents by ourselves, until my family joined us at
lunch. More presents, food and a good jigsaw puzzle! Then onto
Grandma's for dinner (and more presents!). But it wasn't over yet!
On Sunday, we went to my sister Michele's for lunch (yummy beef
brisket) and then to the Feredjian's (our neighbors) for another
wonderful gathering of friends and food. Whew! It was a busy,
but good three days. When you have family and friends to celebrate
with and spend time with, that's makes all the difference. We are so
lucky to have the traditions we do, and thankful we could once again
be all together to appreciate each other's company. Now we are
recuperating.........
This
morning when I was getting Darren up, he asked for his slippers
instead of his sneakers. Sometimes he just wears his slippers til
its time to go out, so I didn't think much of it. Later, I went up
in his room to do some laundry, and he's completely bent over in his
chair. His backpack is half off of his chair, and his stretchy loops
are out (I knew I had put them in his pack for therapy today). He
already had one sneaker on, and was working on the other! It was
really hard for him, but I didn't offer to help, just remarked how
impressed I was. I went about my business, and later, he had both
sneakers on and loops were back in his pouch. I was really impressed
with all of that! He continues to be so motivated and determined. Of
course, he has his frustrating moments when he is trying really hard
to do something and he can't quite do it, but he never gives
up.
The
jigsaw puzzle Michele gave to Ari on Christmas inspired Darren to
want to do another, so a new one - 2000 pieces! - is now spread out
on the kitchen table. Its great therapy for Darren to manipulate the
pieces, and its a fun thing to do for me, too. If anyone stops by,
we invite them to help! We'll see how long this one takes; I have a
feeling it will be awhile....
In
the meantime, Darren is closer to signing up for an online course
for the spring semester. It will probably be an intro course of some
sort, similar to what he would have taken as a freshmen. He's
looking forward to doing it, and I think it will be a very good
thing to get his mind working again. I'll let you know what he signs
up for.
As
the year winds down, I wish all of you a happy and healthy new year.
I look forward to many positive changes in 2005, and hope for a
physical, emotional
and spiritual renewal as the new year begins. I wish the same for
you, your families and loved ones.
Love,
Cynthia
January
4
Wow,
January 4th! Happy New Year everyone. I hope you enjoyed the
holiday.
I'm
writing this as I'm "on hold" with the insurance company. Not for
Darren, this time, but for Ari. Just minutes after I wrote the last
update, I received one of those dreaded phone calls from your child
that something is wrong. This one came from Mountain Creek, where
Ari had been ski racing. She had fallen and twisted her knee. A week
later, and its still swollen and painful. We are trying to make an
appt. for an MRI, but the new process of getting a pre-certification
and help in making the appointment has frustrated me all day today.
I guess if I write long enough, maybe they'll pick up eventually. At
least I'm doing something productive while waiting.
So
in the meantime, Ari is hobbling around on crutches, dreading what
might be wrong with her knee. Let's hope its something minor and she
can get back on her skis as soon as possible.
Speaking
of insurance, I was notified today that they will cover a piece of
equipment for Darren - a standing machine. Yea!!! It will be really
good for him to get used to standing, as it will stretch out his
hips and legs, and the weight bearing aspect is important also. So
that is good news today!
Well,
our home health aide is back, and its wonderful to have the help.
She is a fast learner, and very thorough and careful in her care of
Darren. Between her 3 hours in the morning, and friends taking
Darren to Kessler some afternoons, I am getting time for myself to
get office work done, run errands, etc. More sense of a routine,
which is coming in bits and pieces. At least its coming, and I am
thankful for that.
Darren's
spirits continue to stay positive, and he is working at being more
and more independent everyday. With proper set-up, which is easier
now in the accessible bathroom, he can do his own catheters several
times a day. Its just a matter of figuring how to set things up, and
where, and how to make things as easy and convenient as possible.
Its not only easier for us (me and John) but so much better for his
own sense of accomplishment and independence. So he continues to
work hard at all kinds of skills.
Our
2000 piece puzzle continues to keep us busy, and is another good
form of therapy for Darren as well. It gives us something to do in
between other activities, and we sit and chat while doing it. (I've
just been disconnected from the ins. co. and now had to re-dial and
start all over again...)
A
little FYI for the following families: you have containers and/or
plates on my front porch waiting for you - the Weingartens, Wheales
and Kobylarz. As always, thanks to you and all the other food
donors. We continue to get the BEST meals!
Well,
my call still hasn't been answered by a live person (its been 45
minutes now), and I'm afraid by the time they do pick up, if they
ever do, that the MRI place will be closed and we won't be able to
do the scheduling anyway. Oy,
how frustrating. I guess it will be tomorrow's
business.........
With love, hope and
prayers for future
recovery,
Cynthia
January
8
Just
to mix things up a little bit, this is Ari, and I just wanted to say
a few things about the concert. My mom will fill you in on more
details about Darren soon.
Unfortunately,
I waited until Roots of Rebellion, the last band, was finished
playing when I went on stage to say my thanks. By that time a lot of
the audience had filtered out and only a fraction of the people were
still there. So for those of you who didn’t here, I just thanked Mr.
Wubbenhorst and the KHS Alumni Association for putting on such an
amazing show. All three bands did an outstanding job and performed
fantastically. Also, Mrs. Torriello and the Principle’s Ambassadors
did an awesome job with ticket sales and advertising. The concert
was actually over-sold, and there was little standing area left, to
believe it or not. I am truly amazed at the number of community
members that came out to this event, and there’s nothing more heart
warming then that. It’s really comforting to have the entire
community behind my family, and it really helps us along everyday.
Not only Kinnelon residents attended this concert either. Many
family friends from surrounding towns came, including our ski family
that we have been a part of for the last several years.
Hopefully
most you that were there saw Darren, as he was anxious to see a lot
of people.
Another
huge thanks to the Wubbenhorst’s who did an outstanding job putting
the night together, your efforts are really appreciated. Thanks to
everyone who came out to the concert, what a night to
remember…
Much
love, Ari
January
10
Hello
everyone!
First
off, a very special Happy Birthday wish to my good friend and
neighbor, Carol Gordon. Many of you have "met" Carol through e-mails
and phone calls while she was helping with the e-mail updates and
the dinner arrangements. Here's a "shout out" as all of you kids
would say!
I
want to tell you about the events of last Wednesday, but they are
routine compared to the wonderful concert this past Friday night. So
I'll start with the concert and work my way backwards!
As
the song says "Oh, what a night!" Everything about it was perfect,
from the pre-concert dinner at the Regans to the kids being at our
house afterwards, and everything in between. Andy Wubbenhorst did a
fantastic job pulling it all together, and it was a
huge success. I have an idea of some of the people who were
involved in the many aspects of the evening, but instead of
mentioning some and leaving out others, I hope you all accept our
THANKS without naming names. Our thanks, too, to the bands and their
"behind the scenes" people who gave us the music. Suffice it to say
that I know an event like that takes much planning, and we truly
appreciate all of your efforts, large and small alike. Thanks also
to all those who placed ads and messages in the program. What a
surprise to see some names we haven't heard from in a while.
Everyone was so generous and supportive.
It
was so good to see so many people, and for so many people to
see Darren as well. I have to admit it did feel kind of strange to
sit there listening while people said our names, realizing this was
all for US. Strange, but heart-warming at the same time. Once I got
past that, I enjoyed seeing everyone, dancing, and socializing. The
hugs were the best! And to see so many people go and talk with
Darren was great, too. I know he enjoyed seeing
everyone.
Not
only was it great to realize that so many Kinnelon residents
supported us, but friends from afar who traveled here just for the
event. That was really special. It was an evening to be remembered
for a long, long time!
Now
back to last Wednesday! Darren woke up that morning and said "I want
to have a really productive day today." (No kidding, he said exactly
that.) I asked him what he meant by productive, and he proceeded to
tell me that he wanted to get on the mat to do exercises, use the
electric stimulation on his triceps, register for his on-line course
and read. I thought it seemed like a lot, but OK, who was I to
discourage him? So after the morning routine of his care and shower,
he wanted to dress himself. He always puts on his t-shirt, but that
morning he wanted to put on his pants. I think he wanted to practice
this, because an OT was scheduled to come on Friday to work on just
that. So work he did, and with minimum assistance, he was successful
in getting his pants almost all the way on. After that, he wanted to
roll himself and get into a sitting position, and get himself out of
the bed. (All the while I'm thinking - well, he wanted to be
productive today...) Keep in mind that these are all tasks we can do
ourselves with a minimum amount of effort. Not so with Darren. He
works and struggles to do these things, and each time he does them,
he gets better and better. But they are very tiring.
Anyway, Grandma Millie was here for the end of the dressing and
the rest of the routine, and she was very impressed. She is his
biggest cheerleader (next to me, of course!) and was clapping for
him. She gave him even more inspiration, and kept him smiling,
too.
Later
that day, Arek came over to do his stretches and exercises with him,
and he also signed up for his on-line course and ordered his books.
That evening, another friend came over and worked on his arms and
shoulders. He also managed to do some reading. He figures he needs
to get back into that! He's reading The Dennis
Byrd Story.
I
think I might even be leaving something out that he
did, because by the end of the day, he was truly exhausted!
Talk about a productive day! He accomplished his goals, and then
some. He was quite proud of himself, and so was I. He was like that
energizer bunny that day. And he had therapy and went to the
fitness center the day before, then had therapy both Thursday and
Friday. Also on Friday morning, the OT did come, and he worked some
more on dressing. You can imagine that this weekend, he took it
easy. Deservedly so!! (Except for the concert, friends over
afterward, the JETS game and more friends, and 2 Bantam hockey games
to help coach - was that taking it easy???) Then the routine started
all over again today, with the OT here again for MORE dressing! And
today it was even easier and faster. The whole idea is "problem
solving" to see what works, and what doesn't, and see what makes the
tasks easier. Whew, I feel tired just re-living the whole
thing!
I
hope I give you a little bit of insight into what
Darren does on a daily basis. Things like getting out of bed,
taking a shower, getting into the car - things that take us just a
few minutes - take lots more time for him. But every day, there is
improvement and progress. And every day, he does more and more for
himself. As we take each day at a time, I am thankful each and every
day that he is motivated, determined and in such good spirits. I
hope for those of you that got to see him at the concert, or have
seen him here at home, or out and about, you get a sense of who
Darren really is. If I might say so myself, he is a wonderful kid. I
am truly proud of him and all that he has accomplished.
Thanks
to all of you for your continued support. With so many people
pulling for us, I know great things are possible.
With
love and prayers,
Cynthia
January
14
Hi
everyone, I think this is going to a "Templeton Family" update today
- what a great way to spread news!
Happy
17th Birthday to our wonderful daughter, Arianne. Today she
passed her driving test! Yea!!! I was so glad she did, after finding
out that her ACL (ligament) is torn in her knee and surgery might be
needed, she did not need another disappointment. So passing the
driving test was a good thing! She has an appt a week from today
with a knee specialist, so we will discuss options then. In the
meantime, she will start PT today.
A
few follow-up comments on last week's concert. Only a few adults
were left when Ari got up on-stage to thank everyone, but from what
I hear she did a great job. Even John & I were in the hallway,
so we didn't hear either. But I am so proud of her for doing that.
Good job, Ari!
If
anyone has any of the Trends or Daily Record articles and pictures
that were published either before or after the concert, could you
please e-mail me? I only have the Record article the day before, but
I understand there was a picture the day before that (Wed), and also
Trends articles before and after. So please let me know if you have
an extra copy I might be able to have.
A
lot of Darren's friends are going back to college soon, and I just
want to say a huge THANK YOU to all of them, including those that
are home and commuting locally. They are all great kids,
spending time and going out with him. You might think that, well,
they'd do that anyway. But sometimes kids have a hard time with
situations like this, and don't know what to do or how to do it. Not
his friends. They have been there for him, and as his mom, I say
THANKS!!!
Not
much other news to report, except to look for Sunday's Star Ledger,
where John was interviewed about the non-hockey season, and a
photographer came to take a picture of both John and Darren.
With
love and prayers,
Cynthia
Sunday, January 16, 2005
NHL season appears
lost
BY RICH CHERE
Star-Ledger Staff
Neither the NHL nor the players' union
needs an official drop-dead date to kill any last chance at playing
hockey this season.
It now seems likely the 2004-05 season
will be lost while both sides remain firm in their fight over a
salary cap. Originally, yesterday was thought to be the unofficial
drop-dead date for a 40-game schedule, but if there is no new
collective bargaining agreement by Feb. 1, it will be impossible to
play an abridged season of just 32 games. Commissioner Gary Bettman
has said there will be no hockey in July.
"I honestly don't think they're ever
going to cancel the season for legal reasons," Devils player
representative Brian Rafalski said last week. "But unless they come
up with something different, I don't see anything happening. Are we
just about out of time for this season? Yes."
The Players' Association, which has
made significant concessions in a proposal to roll back salaries 24
percent, will not discuss a salary cap and says the next move must
come from the league.
Bettman and the owners made a
counteroffer of a salary rollback scale from 15-35 percent and the
elimination of salary arbitration, but that was rejected by the
players. Bettman says no new proposal is in the works and the owners
remain adamant about dealing with cost certainty through a salary
cap.
"Collective bargaining is a dynamic
process, but I continue to believe the onus is on the union," NHL
chief legal officer Bill Daly said via an e-mail reply. "We've
looked at several scheduling scenarios and, while I'm not prepared
to be specific as to how many games would need to be played to
create a legitimate schedule, I do believe we're into a very
critical time period if there is any hope of playing games this
year."
As the lockout nears the four-month
mark, here's a look at those affected:
THE GENERAL MANAGER
Taking the NHL away from Devils general manager Lou
Lamoriello is a lot like taking a steak out of the mouth of a hungry
dog. He is not happy.
"Do I have more free time? I sure do,"
Lamoriello said with a tinge of bitterness. "Maybe the people in the
office wish I wasn't around as much. I'm sure they'd like to see me
on the road more."
Lamoriello has done his best to keep
busy. In addition to his role on the NHL's labor team, Lamoriello
has monitored the Devils' draft picks, attended the world junior
championships in North
Dakota and has seen many more minor-league
games than usual. He also has concentrated on the proposed new arena
in Newark.
But without the Devils, one of the
game's hardest-working GMs undoubtedly has felt withdrawal symptoms.
He attends virtually every game (home and away), every practice and
jets off to see other games on off-nights.
"I think it's been hard on everybody
-- the players, employees, the office staff," he said. "It's hard on
a lot of people, and I feel for them. When you see where we are, the
potential for the season not happening is real. It doesn't look
good, but everything should be between the commissioner and Bob
Goodenow."
Lamoriello said he stills speaks with
other GMs, "but not about hockey. There are friendships as well."
And he speaks daily with Devils owner Jeff Vanderbeek about the new
arena.
"My work habits haven't changed,"
Lamoriello said. "The only change is, unfortunately, I'm not seeing
what I have the passion for -- the games and practices."
Lamoriello has avoided layoffs and
continues to pay his radio broadcasters and office staff. But, he
admits, the toughest days may be ahead if a shortened schedule
cannot be played. Cuts will need to be made.
"We haven't had to do anything yet,
but we will shortly," he said.
THE PLAYER
It was a perfect summer for Devils defenseman Scott
Niedermayer. First, he won the Norris Trophy as the NHL's top
defenseman and then an arbitrator awarded him a one-year contract
worth $7 million, a substantial increase from the $4 million he made
last season. Finally, he helped Team Canada win the World Cup
of Hockey in September.
But Niedermayer never got to enjoy his
status as the best defenseman in the league, and has seen millions
of dollars disappear during the lockout.
"I'm not going to complain,"
Niedermayer said from his home in British Columbia. "I've been
playing a long time, I have had success on the ice and been paid
well for it. Obviously, the contract I signed was the biggest I
would have made. It's too bad for sure, but that's the way it goes."
Niedermayer, who has lost
approximately $3.5 million, said everyone has endured
disappointments.
"Look at Tampa
Bay," he said.
"They win the Stanley Cup and they don't get to put up their banner
right away. I don't know how they got their rings. This is
definitely not what anyone would want. The majority of hockey
players want to be on the ice."
Niedermayer has made the best of his
time off, however. He and his wife, Lisa, spent several weeks
vacationing in Hawaii and he enjoyed Christmas
and New Year's at home.
"Quite enjoyable, actually,"
Niedermayer said. "When you have three kids, it's not too difficult
to find things to do. Do I miss (hockey)? Yes. Did I miss training
camp? No. But I'm used to playing hockey at this time of year, so it
is strange. I've tried not to think about it a whole lot.
"During the last lockout, I always
thought it was about to end. This time I'm taking the approach that
when the call comes, it comes. That's the only way to make it a bit
easier."
THE MINOR-LEAGUE EXECUTIVE
With the NHL out of sight, minor-league hockey has been out
of mind for most fans.
Back in October, minor-league
executives thought NHL fans hungry for hockey would start attending
minor-league games. Some have, but most have not.
Mike Miller, vice president and
general manager of the Toledo Storm of the ECHL was one of those who
expected his club to benefit from the lockout.
"I've kind of changed my tune the last
few weeks," Miller said. "We have not seen a change in our gate in
relation to the lockout. I thought the NHL lockout would have helped
business for a majority of minor-league teams. Here in Toledo, it's
had the opposite effect.
"We're south of something called
Hockeytown. I think hockey being on TV every night and the Detroit
Red Wings playing got people thinking about hockey and it helped us.
An NHL game is a 2 1/2-hour infomercial for us reminding people of
hockey. But I don't hear a lot of hockey talk. Hockey isn't on
people's minds."
Miller said some fans were uncertain
about whether the lockout extended beyond the NHL to the minors.
That confusion does not seem to be a problem, but getting fans
interested without the high-profile NHL remains a concern.
THE REFEREE
No one has refereed more
NHL games than Kerry Fraser. This would have been his 30th NHL
training camp had it not been for the lockout.
But the
respected referee is getting himself prepared to be a full-time real
estate agent if the season is canceled. Fraser and his wife, Kathy,
earned their real estate licenses during the lockout in 1994 and are
ready to fall back on that profession.
"Until we get
the final notification, I am optimistic," Fraser said. "So much is
at stake, it's in everybody's interest to find a resolution. But
there's a lot of anxiety. As much as I'm trying to stay upbeat and
positive, there are also those moments.
"Forget the
money we're losing. If the season is a wash, we're not going to
replace that $300,000 we're losing. But age also becomes a factor.
You can't do this forever."
Fraser, 52, has
used his free time to work on projects around his South Jersey home.
He was told by
an electrician that 55 feet of trenches three feet deep had to be
dug from the house to the coach lamps, so Fraser did the digging
himself with a pick and shovel.
Then, the
driveway needed repair. When he saw a contractor jump out of his
backhoe to toss chunks of the driveway into the bucket, he put on
his work clothes and offered to do the job.
"The contractor
said, 'You'd better be careful, you might break a fingernail,"
Fraser said. "I didn't bother even putting gloves on. I did the job
and then went inside and checked my fingernails."
Fellow ref Bill
McCreary is doing carpentry work with a kitchen cabinet maker. Don
Van Massenhoven is selling cars in his hometown in Ontario. And
Rob Shick is supervising amateur officials as a volunteer.
Fraser and his
wife have become ecclesiastical ministers.
"It's
frustrating for all of us in every facet of the game," Fraser said.
"We're trying not to buy a ticket on the roller-coaster ride. If you
let this disruption wreak havoc on you emotionally, it affects how
you feel, your family and the people around you."
THE FAN
Longtime Devils season
ticket-holder John Templeton will not look back on 2004 fondly. At
the end of July, the Kinnelon resident's 18-year-old son, Darren,
was injured in a diving accident at the Jersey
Shore and
remains paralyzed below the waist.
The
NHL's labor issues weren't foremost on Templeton's mind as his son
began therapy, but father and son have shared hockey since Darren,
then a 4-year-old, attended his first Devils game.
"We're
missing it for sure," Templeton said. "It's our main sport. For
20-something years, my winters have centered around hockey. It's a
big void. We never paid attention to other sports, but I've become a
Nets fan.
"It's
been a really difficult year for us. In a way, not having hockey
might have been a godsend. I probably would've wound up giving lots
of tickets away."
The
Templetons have had more contact with the Devils than most.
Lamoriello has called many times to ask about Darren. Several
members of the organization have visited.
Templeton, who has attended around 35 games a year since
1983, guesses there won't be an NHL season and says Darren misses
watching games on TV. When the league comes back, father and son
will return to the Meadowlands but won't follow the team to
Newark.
"The
lockout won't (sour) me," Templeton said, "but the Devils moving to
Newark will. I don't want to see
that happen at all. That would probably be the end of my tickets."
THE TICKET
GUY
Ron Vanderveen's job as
general manager of Continental Airlines Arena is to make sure the
building is as busy as possible.
This time of
year, that usually means trying to find a concert or a family show,
such as the circus, to rent the building months from now because the
Nets, Devils or Seton Hall are usually using the place.
But with the
Devils on the bench because of the NHL lockout, Vanderveen is having
a year like no other, wearing out the buttons on his phone pad as he
tries to book some 25 prime nights when hockey won't take place
there without a last-minute labor settlement.
"It sure is
interesting," Vanderveen said. "It's a lot easier to do this job
when you know for sure what dates are going to be available."
Instead,
Vanderveen is booking acts that will agree to postpone their shows
if hockey returns, such as the religious singer Steven Curtis
Chapman, who agreed in December to perform at the arena on Feb. 26,
assuming the Devils won't be playing the Islanders that night, as
they were supposed to.
During the
fall, the NHL would only release arena dates within 45 days, but
Vanderveen and others have already begun booking dates much further
out than that. For instance, Vanderveen normally wouldn't have
booked any dates the week of April 13, when the NHL playoffs are
supposed to begin. Now he's got Cher coming on April 13, Rod Stewart on the
15th and probably an Indian concert the next night.
It's not the
Dave Matthews Band, but right now the arena will take what it can
get.
"Usually we're
booking shows six to eight months in advance," Vanderveen said.
"There is only so much you can do on one to two months notice."
Staff writer Matthew
Futterman contributed to this
report.
January
23
Hello
everyone,
Today
it is 6 months since Darren's injury. I think the 23rd of every
month will bring tears to my eyes as I remember the day that changed
our lives. I can't imagine it ever being easy, but I am hopeful it
will be. At least I hope it gets better than it is
today.
While
I have no new news to report, I will say that every day, Darren gets
stronger and stronger and is able to do more and more for himself.
He is still very determined to do things himself, and believes he
will recover. His positive attitude continues.
Yesterday
(Saturday), we had a "therapist" come to the house who specializes
in a particular method of stretching and exercising. She follows the
techniques of a clinic in Florida, and was very
knowledgeable about stretches and strengthening. We really liked
her, and she was able to give us a lot of stuff we can do on our
own, and with others' assistance. Unfortunately, the snow storm
interfered with her time, but the session was very worthwhile. In
one way, what she had to show us was overwhelming. Darren could be
busy the entire time he is awake, doing "something!" But I know the
stretches are good, and trying to get the body parts to "wake up"
seems to make sense. So that was a worthwhile find, and I'm sure
we'll have her come back. One noteworthy thing - she did one stretch
with Darren and could feel his ab muscles contracting. That was very
positive and encouraging, so we'll be sure to work more
on those muscles.
We
tried to do something today that turned out to be very difficult and
emotional. We wanted to sort out some things in Darren's "old" room,
and put some things into his new room. As John and I came back into
the room after moving a piece of furniture, his head was down
on his desk, and he was crying. Well, we all were crying in a matter
a minutes. He said it was just too hard being in that room, with all
of the old memories. I said we need to hang onto those memories,
because they were good memories, and now we would make new ones.
Lots of tears, hugs and tissues (even now as I write, there are
more). I knew the task would be hard, which is why I kept
putting it off, but I underestimated how all of us would react.
Needless to say, we put it off for another time in the future.
Perhaps we can tackle it one small step at a time, and see how we
do.
This
past week, I had Arianne to two different doctors. She has TMJ in
her jaw, causing a loud click when she opens her mouth wide, and its
been getting worse. So she was fitted with an "appliance" to correct
the alignment of the jaw. Its uncomfortable, but hopefully will do
the trick. Then she went to see a knee specialist, and sure enough
he recommended surgery to repair the tear in her ACL. We were
expecting that, so it was no surprise, but it is worrisome, of
course. I am very proud of how Ari is handling all of this. As much
as she looks forward to ski season (all year long!), she seems to be
keeping it in perspective. Hopefully Darren will be a comfort to her
as she was to him during his time in the hospital. And I'm sure he
will be. This is only same-day surgery, and its scheduled for Feb
17th. I figured we would schedule it around the few days she has off
for President's Day, and miss as little of school as possible. I
might be calling for some reinforcements that week, friends, so
beware!
Please
know we continue to appreciate the meals that are being delivered,
and thank all the wonderful cooks who are keeping us fed and
healthy. You are all so generous to give us your time in doing that.
Besides the therapy at Kessler 3 times a week, it seems that at
least one other day there is another kind of appointment, for
Darren, and now in addition to that for Ari, too, so the meals are
still a huge help. Thank you.
I
look forward to hearing from more of you, now that the holidays
are over, and a routine is coming together. Please call or e-mail
and we'll try to get together.
With
continued hope for healing, and with love and prayers,
Cynthia
January
31
Hi
everyone, I hope you all had as good a weekend as we did here at #8
Honeysuckle!
It
started with dinner out with friends on Friday night, a nice lunch
and visits with friends on Saturday, playing cards and enjoying a
fabulous dinner in on Saturday, then more friends visiting on
Sunday. A very special visitor also came on Sunday, thanks to our
friend Randy Velischek, who arranged for Scott Stevens to come and
see Darren. For all of you hockey fans, especially Devils fans,
Scott needs no introduction. For all the others, he's the Captain of
the NJ Devils. What a special visit! He was great to have here,
asking and answering questions, and just chatting. What a super guy.
While I don't usually "name names" in my updates, I have to say a
huge thank you to Randy for setting this up. What a good friend you
have become, and it is wonderful that you have shown us how much you
care about Darren and our situation.
This
morning, I woke with a smile on my face. I had two dreams of Darren
walking. One was very detailed and clear, the other was just a short
bit of a fuzzy dream. I couldn't recall much, but he was definitely
walking! Two friends also dreamed of Darren walking - and I love to
hear those kind of stories. Positive thinking (and dreaming) can
only be signs of something good, I just know it.
For
the first time since I've been home, I walked on the treadmill this
morning. It felt good! I also went to the office for a few hours,
and instead of just running in and out to do something specific, I
stayed for the afternoon and did routine stuff like answer the phone
and filing! That felt good, too. Of course, it took me a while
to get "re-acclimated" but after that, it was great. Who would ever
think that just doing routine "stuff" could feel so
good?!
Well, since this update has been all about me so far, I
better include some news about Darren - that's what you all
want to hear anyway, right? He has started his online course, Intro
to Philosophy - and got a hundred on his first
quiz. He
also did his weekly work in the first few days, so he knows he'll be
able to handle the workload if he stays on top of it. I have no
doubt that he will, knowing the type of student he has always
been.
Other
than that, no real new news to report. I hope and pray for some
new movement, just to see some healing. It is such a slow process,
and we just can't hurry it. People who see Darren infrequently are
still impressed with how much he can do, and how much he has
progressed since they last saw him, so I know he is doing well. But
it would be nice just to see something new. Until then, we can only
pray.
I
have added new pictures to the online album, so check it out when
you have time, and please sign the guestbook. Here's the link to the
album: http://www.imagestation.com/member/join_signin_prompt.html?album_id=4229700093&bnak=1&rf=album_guestbook&ru=%2Falbum%2Freview.html%3Fid%3D4229700093 Also,
if you'd like to e-mail Darren directly, you can write to him at
puckzman16@yahoo.com.
I know he'd like to hear from you.
Until
next time,
Cynthia
Finally, February
8
Hi
everyone, and my apologies for not writing sooner. Waiting this long
in between is bad because now I can't remember where I left off and
where I should begin again! I'll try not to do that
again!
So,
of course, there's a lot to tell you - the most exciting news is
that Darren is feeling his "glute" muscle on his right side. As best
I can tell from my "exercise file" (where I put all those clippings
of exercises and information I hope to use someday...) it sounds
like its the gluteus maximus. The description I have of its job says
"helps straighten leg and lifts leg away from body." So we know how
important that could be. And the fact that its new movement, or
muscle contraction, is wonderful news. So we hope and pray that it
is truly a muscle working, showing continual
healing.........
More
good news comes from Alabama, where a patient from
Shepherd is now reporting movement in first his right leg, then his
left leg, and now he's walking on a treadmill with a harness and
assistance! How wonderful is that??!! We wish Mike the best in his
recovery (he's a similar injury level, July 4) and look forward to
hearing of more progress.
This
weekend was fun-filled and exciting. Our ski family/friends at
Hidden
Valley hosted a
very nice event for Darren on Saturday night. It was a dinner,
casino night, silent auction and a live band. It was SO good to see
many people we hadn't seen until now. Friends from Mountain Creek
were also there to see us and support Darren, and that was very
special, too. A huge THANK YOU to Heather and Dave Kahl, Charlene
and John Malley, Debbie and Dave Wiley, Nancy and Rich Howes, and
ALL of the others who worked so hard (and so quickly!) to put this
together. Thanks also to Greg Pier for the wonderful words he had
for Darren and for all of us. It was a great night. Darren even said
a few words, which made me very proud of him (again).
Being
at Hidden Valley the night before a race
means one thing - the next day's race is in every conversation. So
it would be fitting that Darren & I went up to the mountain the
next day for the race. If there was ever a perfect day to do that,
Sunday was the day. It was unseasonably warm, sunny and beautiful.
After much discussion of getting Darren from the Training
Center to the
race hill (quite a distance) - pull him in a tube? put him in the
Cat? snowmobile? - Darren decided to stay put in the Training
Center and see
people as they came in. It worked out fine, and he got to see lots
of racers and their parents. Of course, since I was sitting there, I
got put to work, which I didn't mind, and helped me feel part of it
all once again. Ari wasn't racing, but she was in the timing booth,
announcing for the race. Apparently she's quite good at that, and
enjoys helping, too.
As
if that wasn't enough excitement, we still had Super Bowl
festivities to participate in! Thanks to our good friend, Carol, for
putting together the "pool" for bets. It was fun keeping track of
how was winning, who might win, and if "this" happens or "that"
happens, who would win! It was a fun evening with good food, good
friends and a good game to watch. The quarter winners were Millie
Harris (go Mom!), the Alesandro's and Joe Ragno. The final score was
won by the DenDulk's.
Darren
is enjoying his on-line Philosophy course, and is finding the amount
of work manageable. He is thinking of attending William
Paterson University in September,
so we are exploring that option now. He is anxious to go to a campus
and take classes in the classroom, and I think it will work out just
fine. He'll be starting his driving evaluation in May, so hopefully
will be driving and have a vehicle by then. Its a good goal to be
working toward, and I give him a lot of credit to adjust his
thinking and his plans for such a different approach to college. Not
that it hasn't been difficult to adjust, but he seems to be handling
it OK.
Now
its back to the weekly routine. I now have an aide for the 5 weekday
mornings, and that is working out well. I am still exploring
other funding sources, programs and services, but it is a long, slow
process and lots of paperwork. Between that and figuring out the
insurance mess, it keeps me busy!
With
love, prayers and hope,
Cynthia
February
16
Hello
everyone,
This
past weekend we went to see the campus of William Paterson University and Ramapo
College. Darren
really wants to go out to school in September, and he is considering
these two and Montclair. All local and within
commutable distance. It was very emotional, and more difficult than
I thought it would be. Last year, Darren was deciding between
Bentley College and Boston
College. So
different now. I don't mean to imply that these local schools are
not good - they are. And we know lots of people who have gone and
currently go to local schools, and that's all good, too. But its
so....different.......now. Now we have to assess the terrain,
the accessibility, the parking. Puts a whole new spin on things.
Yes, its great that Darren wants to go, and that's the good
part. He will excel wherever he goes, I know that, because of his
determination and motivation. I just want him to be in the best
place for him, right now. Hopefully, that could change in another
year, and we'll be considering other options. But the deadlines are
fast approaching, so now he is busy (once again) with applications,
essays and required documents.....
Another
emotional decision with accompanying discussion is about a vehicle
for Darren. He will start the Driver Rehab program at Kessler in
May, and we'll be deciding on a vehicle that he can drive and get
himself around in. I have no doubt he'll be able to drive himself,
and what a difference that will make in his independence! But the
emotional part is "this is the kind of vehicle we need" train of
thought. Trying to stay on the positive side of things ("this is a
good thing" kind of thinking) is sometimes more difficult than
others. But each day, each event, each decision must be taken one
step at a time. I keep reminding myself of that.
Yesterday
(Tuesday) was a trying day on the medical side of things. Darren's
left thigh had been swollen for several days, and I thought it was
time to get it checked out. An x-ray to check for fractures or
broken bones, an ultrasound to check for blood clots, and a blood
test. Nothing out of the ordinary, thank goodness, so the swelling
is most likely from a condition called HO (heterotopic ossification)
where excess bone grows from inactivity. Often seen in the hip,
which is where his is. The Doctor will be monitoring it to make sure
its not getting worse. He's had it since about August, I think, and
has been on medication for it all along. At least no fractures or
blood clots! That was the good news.
Here's
how Darren passes on good news, like I've told you all before: "oh,
I can move the middle finger on my right hand today." That was
Monday's news; I didn't even get it til Tuesday! He has been able to
straighten that finger, but not bend it, but NOW HE CAN!!! Yea! More
good news, more healing! The prayers keep working, so PLEASE keep on
praying!!!
Speaking
of prayers, please keep Ari in yours as she undergoes knee surgery
to reconstruct her ACL on Thursday (tomorrow as I write this, but
maybe today as you read it). I am confident that she has the best
surgeon in the area, and that she will recuperate quickly. I'll be
letting you know!
Went
today to look at the pool at Cedar Crest - what a beautiful place!
If Darren could use the pool there once a week, it would be very
beneficial. They are being very accommodating there and trying to
make it work for him, so if everything works out, we'll add that to
our activities. Also went to Morristown to check out another
funding source - a Medicaid waiver. It's pretty complicated, but he
might qualify for Medicaid benefits under a special program even
though technically he doesn't qualify for it. Tricky, but well worth
the paperwork to get some benefits for home health aides, therapy,
etc. We'll see.
Enough
for now - if I could just write more often, these would be shorter,
I think! Oh well, I write when I can; I know you understand. Please
keep in touch - I still love hearing from all of you as much as
possible.
With
love, hope and prayers,
Cynthia
February
23
Hello
everyone,
Today
is the 7th month mark after Darren's injury. Could it be just 7
moths? Could it be 7 months already? Time has a way of changing
one's perceptions about lots of things, and I wouldn't even know
where to begin with this 7 month journey. And what a journey its
been.....and you've been right there with me. Not a day goes by
without receiving an uplifting e-mail, a card in the mail, a phone
message, or hearing about something wonderful that someone or
some group in the community is doing for us and for Darren. That is
what keeps me going, and will keep us all going in the next 7 months
and beyond. As we need to cope with this situation as a family, so
we need all of your support as our extended family. I thank
you all for your never-ending love, care, concern and
prayers.
A few reminders: Most of you receive this
e-mail from my good friend, Medora. Lots of others receive it from
someone else who is forwarding it, and maybe even forwarding it
again! Regardless, to keep the communication flowing as quickly as
possible, if you want to write to me, its best to write to me
directly, not hit "reply" because that goes to Medora or someone
else. So, for future reference, write to me directly at cynthiat@optonline.net. Thanks!
Please check out the Hidden
Valley website
at www.hvara.com,
where several photos have been posted after their successful
Dinner/Casino Fund-Raiser evening for Darren. In one of the pictures
showing Darren from the side, he is showing off that million dollar
smile I know and love. I'm sure you will recognize it and see the
happiness on his face. Precious.
Now,
for the latest and greatest from the Templeton household:
Arianne's knee surgery to reconstruct her ACL
went well, and she is recuperating. The first few days were pretty
rough, as we expected. But she is starting to feel better, eat
better, and is overall doing better. She started physical therapy,
and is reaching her (low) threshold of pain rather quickly,
unfortunately. But this is the only way, and she knows it. I feel
like a doctor, nurse and therapist all wrapped into one. At least I
didn't have to learn all about ACL's since I learned about mine in
1992! And that's good, because I'm not sure how much more new
information this old brain can absorb anymore! But seriously, Ari
should be going back to school on Monday, hopefully only missing 4
days of school. Any get well wishes can be sent to her at atempleton@optonline.net. I'm sure she'd love to hear from you.
Darren
made a trip to Marist College this past Sunday to
see some good friends there. Two friends from here drove up with
him, and they had a great time. It was quite a full day, and was
even longer than they planned since they hit the snowstorm coming
home Sunday night. It was a long drive home, with several phone
calls filling us in on their whereabouts. They arrived safely, thank
goodness.
The
next day was a bit hard for Darren. He said that he had had such a
good day the day before, and he wished all his days could be so
good. He also saw firsthand what his buddies are doing, and what he
"should" be doing, and that was difficult as well. He said seeing
the college life, if only for a few hours, showed him how he is not
ready to do it on his own yet. I think he knew that beforehand, but
it was very clear seeing it for himself. Difficult to accept, of
course. But we talked about that being temporary, and having a plan
like he does (going to college locally at first) will prepare him
for the future. I know overall it was a great trip for him, and he
was happy he went. So was I.
Today,
Darren asked if I could work with him on getting into bed, getting
his legs up, taking off his pants, and positioning himself and
moving on his bed. What a hour of hard work he put in! I didn't do
too much, just was there to spot him, and offer encouragement
and pointers. Every once in awhile, I helped, but only when he just
couldn't do what he wanted after spending a lot of effort trying.
His determination showed through once again. He wants to work
toward getting himself into bed, and turning himself so I don't need
to wake up and turn him 6 hours after he goes to bed. I do
think he'll get it, but as with everything else, he needs to
practice and perfect his techniques. Its a lot of planning and
problem solving to figure out how to accomplish what he wants to do.
But, again, he is determined and motivated, so I know he'll succeed.
It was very difficult watching him and realizing his limitations,
but I stayed focused on the positive and what he CAN do.
Since
my updates are few and far between as of late, I can't remember the
last information I relayed, but I believe it was that a finger on
his left hand was moving. Is that correct? Well, I think so, and
then just a few days after that, ANOTHER finger started moving on
the other hand! Healing IS taking place, each and every day. The
toes on his right foot can be moved at will, but nothing yet on the
left foot. I do think that will happen soon, though. He continues to
have good feeling and sensation in his legs and feet, and some
inconsistent sensation in his mid-section. I do think his abs are
starting to kick in, as his balance is improving. More work, more
time, and more prayers, and who knows what can happen.
As
the 25th anniversary of the 1980 "Miracle on Ice" USA Hockey Team is
celebrated, let's keep praying for our own miracle for Darren's
recovery. If a miracle can help a bunch of college players win the
gold medal in Lake Placid, surely
one can help Darren walk again. Please continue your
prayers.
With
love and hope,
Cynthia
March
4
Hello
Everyone,
Well,
its been a good week here at the Templeton's - Arianne got a good
report from the Doctor and was allowed to shower and drive after her
appointment this past Tuesday. Yea!!! She is working hard at
therapy, and knows what it will take to regain her movement,
strength and sports abilities. I have no doubt she will recover
quickly.
It
was a pretty uneventful week for Darren, which means routine
happenings with no problems! He is feeling good, staying positive
and working hard. His physical therapist is concentrating on working
on "higher level" skills with him while at Kessler, and he can
continue to practice and work on lower level skills while at home.
Darren really wants to be more independent at night, getting into
bed, undressing, etc. As usual, he is quite determined, and will
succeed in time.
He
did complete applications for Montclair University and Ramapo
College, which
were due March 1st. William Paterson's deadline is May 1st, so that
one is still in progress. As soon as the weather breaks a bit, we
will be taking tours of all three places.
Yesterday,
Darren's "EZ Stand" arrived, after many delays. I thought it would
take longer to build up to a standing position, since he hadn't done
that in a few months, but after only about 30 minutes, he was
upright, and continued to stand for another 45 minutes or so.
Standing stretches out his hips and legs, gets his weight off his
butt, and gets some weight-bearing on his legs as well. All good
benefits, and very worthwhile to do as much as possible. Another
activity to add to the list for things he can do at home.
So
that's about it for now. We look forward to Casino Night tomorrow
night, and seeing a lot of you there.
With
love and prayers,
Cynthia
March
11
Hello
everyone, and Happy Friday!
It
has been a busy week here, with lots of news to report. Last
Saturday, Casino Night was held, and I want to thank everyone who
supported it - being there, sponsoring tables, donating items and
gifts and services, organizing, etc. etc. It was a wonderful night,
and if you were there, hopefully you heard both Morgan Coutts and
Darren address the crowd. Morgan was precious, of course, and
impressive at 10 years of age speaking to more than 350 people. By
the way, our friends, Chris and Cheryl Coutts, and their friends Jim
and Chris Caci, were very generous in adding Darren to the original
cause of raising funds for Making Headway. This year, the proceeds
were split between the two, and we are very appreciative of their
efforts and the success of the evening. I was very proud of Darren,
who wanted to speak, and he thanked everyone for coming and for the
support of all of our friends. I really tried not to cry while
listening to his voice, but of course, I was not successful. It was
wonderful, nonetheless.
On
Sunday, the day after, we had a manufacturer's rep bring a Honda
Element to our house for us to see. A company in Michigan
retrofits Elements to accommodate wheelchairs, and we got a chance
to drive Darren's wheelchairs in and out of it, operate the
automatic lift, drive it around, etc. It was a great opportunity to
see it and see if it makes sense for Darren. We think it does, and
since it takes about 3 months just to retrofit it, we ordered one,
banking on Darren passing the driving program and being able to
drive using assisted controls. We figured we would get a head start
on the process, hoping everything will be in place for him to
commute to college in September.
Speaking
of college, I had hoped by now to have completed tours of the 3
colleges he is interested in, but Mother Nature had other plans! We
will wait until the weather breaks a bit, then re-schedule the tours
and see the campuses.
We
did visit the YMCA in Mountain Lakes this week, and evaluated
whether there is enough equipment there for Darren to use. He thinks
there is, and we will be meeting with a personal trainer this week
to brainstorm ideas on weight training and strengthening to
supplement Darren's physical and occupational therapy. His therapy
is going well, by the way, still going 3 times a week and working
hard.
The
EZ Stand also arrived since the last update, and Darren has been
using it almost every day. It is SO good to see him upright and
standing! He can stand in it for at least an hour at a time,
sometimes longer. It is so good to stretch out his hips and legs,
and put weight on his legs as well.
As
for me, I started some interesting new things this past week. As I
believe that things happen for a reason, this is just another
example. I had to bring our van in for repairs, and our regular
mechanic could not do the work since it is customized with the
lowered floor, etc. So I brought it to Meineke on Route 23 North.
Well, prior to that, I had been thinking about starting yoga
classes, or trying it out, but hadn't asked around yet, or talked to
my friends about where they were going. Well, driving into Meineke,
there was a building back behind the strip mall that said in big
letters "YOGA." What timing! I drove back there, only to find they
were closed, but when I got home, I checked out their website and
was quite impressed with their selection of classes. So on Monday I
went for the first of a 2 part series on Meditation, then took a
class on Wednesday night. I enjoyed both very much, and can see the
benefits right away. (Don't think I got too carried away, though. I
came home and ate a brownie!!!) It was difficult and challenging,
but exhilarating and relaxing all at the same time. I plan on
continuing, and if anyone is interested, let me know, because we can
both get a free class if I refer anyone! So that is my news for the
week!
In
some of the literature I picked up at the yoga studio, one of the
owners said that he has used "yoga and meditation to deal with the
difficulties in life" and in doing so, "found that the larger the
obstacle, the greater, and more unexpected, was the light that it
shed, compelling him to see with brand new eyes, and opening to the
joy of life." If I can learn to have that perspective, too, then
I'll be better able to handle all that has been handed to me
and to Darren, and to us as a family, and experience the joy that
can be found in each and every day.
With
love and prayers, and always thinking of all of those who support
us,
Cynthia